May 26, 2022
Rare Anaemias International Network (RAIN) is a global, community-based ecosystem comprising patient advocacy associations and individuals supporting rare anaemias. RAIN is focused on implementing activities that advocate for equal access to innovative therapies and medications.
RAIN shares best practice and skills among members and acts as a forum for advice and guidance on a variety of issues affecting patients, such as the cost effectiveness of drugs and treatments, access issues, and much more. We campaign together, joining forces to amplify the voice of smaller organisations and to help patients and health professionals establish new patient support groups where they do not currently exist.
So far in 2022, RAIN has provided an overview of rare anaemias, including signs and symptoms, and diagnosis, launching our monthly social media themes. We have also supported several awareness raising initiatives, including World Cancer Day, Rare Disease Day, International Health Awareness Day, Autoimmune Disease Awareness Month, Fanconi Anaemia Awareness Day, International Nurses Day, and World Blood Cancer Day.
RAIN marked International Thalassemia Day (ITD) on 8th May by posting and promoting Thalassaemia International Federation’s campaign Be Aware. Share. Care: Working with the global community as one to improve thalassaemia knowledge across the RAIN social media channels.
Continuing into 2022, RAIN will be hosting a virtual educational member meeting and will continue to increase knowledge levels in the rare anaemias community through various social media themes, including available treatments, treatment barriers, trials, innovative therapies, and disease self-efficiency. We will also support various awareness initiatives, including Sickle Cell Disease Day and World Blood Donor Day in June.
RAIN is pleased to announce and owes thanks to the independent support of its founding industry partners, Agios, Sanofi, and Immunovant, without whom the initiative would not be possible. RAIN would also like to thank our dedicated member organisations for their ongoing participation and support.
Working in collaboration with the members, the RAIN initiative is delivered by Scientific Education Support (SES), who aim to build communities and networks to facilitate education through collaboration, ensuring that patients have access to the latest support and treatment options.
For more information about RAIN activities, educational meetings, or supporter packages, please contact SES_RAIN@scientificeducationsupport.com.
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